February 26, 2015

Dialoging about Diabetes: PWDs Offer Ways to Improve Communication and Care #10 Catherine Price

As a diabetes educator/healthcare provider (DHCP) I’m observing that the rapidly growing world of the Diabetes Online Community, the DOC for short (link to handout), is helping people with diabetes (PWD) and their loved ones find support and feel supported. People and their caregivers are connecting, building relationships and feeling more positive about the challenges of managing their diabetes. I’m delighted to see this trend!

As a DHCP I’ve long realized that I can’t walk a mile, or even a few feet, in a PWD shoes. I can’t know what it is like day in, day out to deal with this challenging and relentless disease. But, what I do know is that we can learn from each other to change the dialog between providers and PWD to be more positive, more supportive.
Goal one with my Dialoging about Diabetes interviews is to help make living with diabetes…just a bit easier. Goal two is to enhance the two-way street – to help more PWD connect and encourage more DHCPs to open the doors of social networking to PWD.

Here’s my dialog with Catherine Price, who’s had type 1 diabetes (T1D) since 2001. Catherine engages with the DOC in several ways, writing and blogging for the diabetes site ASweetLife.org, organizing patient advocacy efforts and talking about the DOC at medical and pharma conferences. Beyond being a PWD and doing diabetes-focused consulting work, Catherine is a nationally known journalist. Her work has appeared in publications including The Best American Science Writing, The New York Times, and Slate Magazine. Inspired in part by T1D and her interest in writing about nutrition -- she’s written the new book, Vitamania: Our Obsessive Quest for Nutritional Perfection. But first, enjoy Catherine’s responses to my questions about life with diabetes, the DOC and insights from her new book. 

 
March 23, 2014

Diabetes Alert Day 2014 - Help Me Sound the Alarm Louder

Tuesday March 25, 2014 is the American Diabetes Association's Diabetes Alert Day. Though the statistics about the prediabetes and type 2 diabetes epidemics are alarming enough to sound the alarm 365 days a year, Diabetes Alert Day is THE day each year that the American Diabetes Association sets aside to encourage people to TAKE the Risk Test and if need be, TAKE ACTION to diagnose and care for prediabetes or type 2 diabetes NOW. I fully support this effort!

Yes, the stats are downright scary and clearly show the dent diabetes is and will continue to make in our health care system, let alone peoples’ individual lives and livelihood!

 
February 9, 2014

Dialoging about Diabetes: PWDs Offer Ways to Improve Communication and Care #9 Kerri Sparling, author Balancing Diabetes and six

As a diabetes educator/healthcare provider (DHCP) I’m observing that the rapidly growing world of the Diabetes Online Community, the DOC for short, is helping people with diabetes (PWD) and their loved ones find support and feel supported. People and their caregivers are connecting, building relationships and feeling more positive about the challenges of managing their diabetes. I’m delighted to see this trend!

As a DHCP I’ve long realized that I can’t walk a mile in a PWD shoes. I can’t know what it is like day in, day out to deal with this challenging and relentless disease. But, what I do know is that we can learn from each other to change the dialog between providers and PWD to be more positive, more supportive.
Goal one with these Dialoging about Diabetes interviews with diabetes activists is to help make living with diabetes…just a bit easier. Goal two is to enhance the two-way street – to help more PWD get connected and encourage more DHCPs to open the doors of social networking to PWD.

Here’s my dialog with Kerri Sparling, who’s had type 1 diabetes (T1D) for 27 years. Kerri jumped into the diabetes social networking world early on, in May of 2005 with her blog Six Until Me. She regularly contributes her personal thoughts in her column SUM Musings in the D-newsletter diatribe. She’s been an active member of the ever-expanding Diabetes Online Community (aka The DOC) and a diabetes advocate. Now Kerri has authored a book, Balancing Diabetes. Kerri’s book offers her account and the accounts of others, mainly those with T1D, who work to balance diabetes everyday through all the ins and outs of daily life.

 
October 10, 2013

Look AHEAD Results: Please Read Beyond the Headlines

Look AHEAD logo“The Look AHEAD trial showed no benefit in glucose control." "The Look AHEAD study didn't demonstrate a delay in progression of disease in type 2 diabetes." I heard these two statements while attending the Joslin Diabetes Innovation 2013 in Washington DC, October 3-5. One statement was made by a healthcare provider, the other by a marketing person who does outreach with physicians.

They echo the doom and gloom statements summarizing the Look AHEAD study that simply baffle me. But then I remember that the New England Journal of Medicine, in their social media push to publicize the first publication about Look AHEAD (June 27, 2013) since the study was halted about two years early in October 2012, offered up this negative conclusion. This Debbie downer headline then reveberated and snowballed through social media venues for the next 24 hours. 

 
July 17, 2013

Dialoging about Diabetes: PWDs Offer Ways to Improve Communication and Care #8 Moira McCarthy, Raising Teens with Diabetes

Dialog DiabetesAs a diabetes educator/healthcare provider (DHCP) I’m observing that the rapidly growing world of the Diabetes Online Community, the DOC for short, is helping people with diabetes (PWD) and their loved ones find support and feel supported. People and their caregivers are connecting, building relationships and feeling more positive about the challenges of managing their diabetes. I’m delighted to see this trend!

As a DHCP I’ve long realized that I can’t walk a mile in a PWD shoes (or a parent’s in this case). I can’t know what it is like day in, day out to deal with this challenging and relentless disease. But, what I do know is that we can learn from each other to change the dialog between providers and PWD to be more positive, more supportive.

Goal one with these Dialoging about Diabetes interviews with diabetes activists is to help make living with diabetes…just a bit easier. Goal two is to enhance the two-way street – to help more PWD get connected and encourage more DHCPs to open the doors of social networking to PWD.

Here’s my dialog with Moira McCarthy, mother of Lauren who is now 21 years old. Moira’s daughter Lauren was diagnosed with type 1 diabetes in 1997 at 6 years old.

 
May 11, 2013

Dialoging about Diabetes: PWDs Offer Ways to Improve Communication and Care #7 Beverly S. Adler, PhD, CDE

As a diabetes educator/healthcare provider (DHCP) I’ve observed that the rapidly growing world of the Diabetes Online Community, the DOC for short, is helping people with diabetes (PWD) and their loved ones find support and feel supported. People are connecting, building relationships and feeling more positive about the challenges of managing their diabetes. I’m delighted to see this trend!

As a DHCP I’ve long realized that I can’t walk a mile in a PWD shoes. I can’t know what it is like day in, day out to deal with this challenging and relentless disease. But, what I do know is that we can learn from each other to change the dialog between providers and PWD to be more positive, more supportive. Goal one with these Dialoging about Diabetes interviews with diabetes activists is to help make living with diabetes…just a bit easier. Goal two is to enhance the two-way street – to help more PWD get connected and encourage more DHCPs to open the doors of social networking to PWD.

 
March 14, 2013

New Diabetes Numbers – Sound the Alert LOUDER

While we were experiencing a much ado about nothing “snow storm” in Washington, DC on March 6, 2013, hundreds of diabetes advocates were storming Capitol Hill for a cause we should be doing much about.

To kick off their advocacy day the American Diabetes Association’s (ADA) released findings from a report they commissioned, Economic Costs of Diabetes in the U.S. in 2012, at a press conference. Joining ADA leaders at the press event were Ann Albright, PhD, RD, director of CDC’s Division of Diabetes Translation, Judith Fradkin, MD, director of the National Institutes of Health’s division which encompasses diabetes (NIDDK) and several key members of the Congressional Diabetes Caucus, Senator Susan Collins (R-ME) and Senator Jean Shaheen (D-NH) (who has a granddaughter with type 1 diabetes I learned at AADE's advocacy day in 2012).

The stats presented by ADA are downright scary! It is, without a doubt, time to sound the alert about our prediabetes and type 2 diabetes epidemics louder and louder.

Check out a few key stats.* Read through these slowly and repeatedly, it takes a few readings to absorb their impact!

 
January 11, 2013

Dialoging about Diabetes: PWDs Offer Ways to Improve Communication and Care #6 Ginger Vieira

Dialoging about Diabetes As a diabetes educator/healthcare provider (DHCP) I’m observing that the rapidly growing world of the Diabetes Online Community, the DOC for short, is helping people with diabetes (PWD) and their loved ones find support and feel supported. People are connecting, building relationships and feeling more positive about the challenges of managing their diabetes. I’m delighted to see this trend!

As a DHCP I’ve long realized that I can’t walk a mile in a PWD shoes. I can’t know what it is like day in, day out to deal with this challenging and relentless disease. But, what I do know is that we can learn from each other to change the dialog between providers and PWD to be more positive, more supportive.

Goal one with Dialoging about Diabetes interviews with diabetes activists is to help make living with diabetes…just a bit easier. Goal two is to enhance the two-way street – to help more PWD get connected and encourage more DHCPs to open the doors of social networking to PWD.

 
November 16, 2012

Out Raising Awareness During American Diabetes Month

The diabetes stats are downright staggering! Nearly 19 million people are diagnosed with diabetes in the U.S. and another 6 million are estimated to have diabetes but don’t yet know it. Add to this number, another 79 million people with prediabetes yet barely 10 percent of these throngs of people know they have it. 

Unfortunately people continue to think of type 2 diabetes as a ho-hum disease and tend not treat it early and aggressively. Yet we know early and aggressive care of type 2 is exactly what keeps people healthier longer. And we know early awareness and action with prediabetes can prevent/delay the progression to type 2 diabetes.

So, to honor American Diabetes Month, I’ve grabbed every opportunity which has come my way to raise awareness, educate and promote action. Check out links to these guest blogs, videos, and interviews:

 
October 24, 2012

Let’s Look Ahead From Look AHEAD

Have you heard that the Look AHEAD (Action for Health in Diabetes) randomized controlled trial conducted through National Institutes of Health (NIH) was ended two years ahead of schedule? This news crossed my eyes first on 10/20/2012 via twitter. Got to love twitter!

The press information from the NIH’s National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), announced on 10/19/2012 that the trial had been stopped about a month earlier – in September. Why? Because in this long and lengthy trial, in which people had been enrolled for up to 11 years, the people in the intensive lifestyle intervention (ILI) group did not experience a decrease in cardiovascular events (CV) (heart attacks, strokes, etc.) compared with the people in the control group. 

The Key Look AHEAD Question…and Answer
Can an intensive lifestyle intervention program (ILI) which achieves and maintains weight loss help prevent/delay the heart and circulatory problems which are the most common complications of type 2? 

 

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