Back for a third appearance on Sound Bites, the very successful Podcast of my colleague Melissa Joy Dobbins, MS, RDN, CDE, I discussed the value of peer support and peer support communities for people with diabetes and their caregivers. I was joined by two people from the diabetes peer support community, Anna Norton, CEO of Diabetes Sisters and a person with type 1 diabetes and Shelby Kinnaird, a peer support leader for Diabetes Sisters and person with type 2 diabetes.
In mid-2015 at the American Association of Diabetes Educators (AADE)’s annual conference, Insulet held the first Sex, Insulin, and Rock ‘N’ Roll live forum. No joke!
It's September and here's my fall 2016 AADE President's letter:
If you live in a part of the country where the leaves change color, as I do, enjoy the yellows, reds and oranges. If not, enjoy your warm climate as the rest of us layer up.
I'm excited to share with you my very first AADE 2016 President's letter!
It’s my honor and privilege to serve as your 2016 AADE President. Having spent the entirety of my nearly 40-year career as a registered dietitian in the field of diabetes care and education, I believe wholeheartedly that we are at a critically pivotal point in our profession.
If you take care of your diabetes or you’re the caregiver for a friend or loved one with diabetes you know it’s a demanding 24/7/365 job. From day to day, even hour to hour, there are endless decisions to make to manage the tightrope of glucose control and stay safe. Over the course of a year most people with diabetes (and caregivers) interact just on occasion with their healthcare providers. You manage, or self-manage, your diabetes primarily on your own.
The good news is that over the last decade technology has increasingly allowed people with diabetes (PWD) and their caregivers to connect online. You’re giving and getting support, offering practical advice, sharing the latest research and technology news and much more.
As a diabetes educator/healthcare provider (DHCP) I’m observing that the rapidly growing world of the Diabetes Online Community, the DOC for short, is helping people with diabetes (PWD) and their loved ones find support and feel supported. People and their caregivers are connecting, building relationships and feeling more positive about the challenges of managing their diabetes. I’m delighted to see this trend continue!
As a DHCP I’ve long realized that I can’t walk a mile in a PWD shoes. I can’t know what it is like day in, day out to deal with this challenging and relentless disease. But, what I do know is that we can learn from each other to change the dialog between providers and PWD to be more positive, more supportive. Goal one with these Dialoging about Diabetes interviews with diabetes activists is to help make living with diabetes…just a bit easier. Goal two is to enhance the two-way street – to help more PWD connect and encourage more DHCPs to connect PWD to the value of social networking.
Here’s my dialog with Kelly Kunik, who’s lived with type 1 diabetes (T1D) for 38 years as of Halloween 2015, (which was also her parents’ anniversary). She was diagnosed at the age of 8. Kelly notes, “My greatest weakness (my broken pancreas) has become my greatest strength & biggest passion.” Kelly is a Diabetes Advocate, writer, blogger, speaker, humorist, and consultant. She says, “I laugh every day and am passionately spreading the word about living a great life with diabetes.”
Tuesday March 24, 2015 is the American Diabetes Association's (ADA) annual Diabetes Alert Day. This day kicks-off a four-week campaign which runs through April 21, 2015.
Diabetes Alert Day is THE day each year that ADA sets aside to alert the public to the Diabetes Risk Test. If the results of your risk test indicates you'r at risk, take the next step to know for sure. The goal is for you or your loved one to TAKE ACTION to get diagnosed and care for prediabetes or type 2 diabetes.
I wholeheartedly support this effort. The time for action is now!
The statistics about the prediabetes and type 2 diabetes epidemics are alarming enough to sound the alarm 365 days a year. They show the dent diabetes is making and will continue to make on our health care system, let alone peoples’ lives and longevity!
According to CDC's Diabetes Facts:
- 29 million children and adults are living with diabetes. (This includes about 6 million people who currently have diabetes but have not yet been diagnosed.) Based on the current U.S. population, about 314 million people - roughly 9.5%.
- 86 million people are estimated to have prediabetes placing them at a much greater risk for developing type 2 diabetes. CDC estimates that’s about 35% of all adults over the age of 20 and 51% of adults over 65 years of age (yes, you read that correctly!). Research from CDC shows, unfortunately, that barely 11% of these people know they have it.
- One in three American adults will have diabetes in 2050.